chronicallyinvisible:

My mantra for the past week: You’re unwell and you’re allowed to be unwell. Sometimes you’re not capable of doing anything but being unwell, and that’s okay. Sometimes all the world needs from you is just to get through each day. You don’t have anything to prove, you don’t have a deadline to meet, you’re allowed to set your own pace. Just look after you.

chronic-illness-cat:

from the amazing diary-of-demosthenes.tumblr.com

chronic-illness-cat:

from the amazing diary-of-demosthenes.tumblr.com

bufotoxin:

constantly having to deliberately downplay your mental illness but also constantly worrying that you’re making it up for attention, somehow

floatawhile:

disabilityinkidlit:

girldwarf:

Pretty much.

[screenshot of Facebook post by someone called Miranda. The post says: “Even if I humor anti-vaccine activists and for a second believe that vaccines cause autism in 0.01% of children they’re administered to (spoiler alert: vaccines don’t cause autism), I am still deeply disturbed that these people are more afraid of people with disabilities than they are of fatal, painful, and endemic diseases. If cognitive disabilities are more threatening to you than children never getting to grow up because polio makes a comeback, you have priorities to reevaluate my friend. Shame on you for brainwashing mothers an families into believing that autism is the absolute worst thing that can happen to a person.]

Ok. I’m sick of this.
  No autism is not the worst thing that can happen to someone. And no I don’t have autism. But I have suffered greatly from symptoms that often add up to autism, even if in my case they don’t. Some people with autism have relatively normal lives. But don’t you dare tell people (especially the people living it) that it’s no big deal. Some people with autism (and other conditions caused or worsened by vaccinations WHICH DOES HAPPEN) are in such a hell all they can manage to do for hours a day is rock back in forth sitting in a dark room naked because of how bad their sensory issues are. I don’t have the exact numbers but it is a much bigger percentage than .01% of people who have issues with vaccinations. And you can’t ignore the fact that since we have started vaccinating people in third world countries (which I’m not saying was the wrong choice) that their autism rates have greatly risen.
   The heavy metals that are in them cause issues. The viruses themselves in them cause issues. Most people agree that people with problems such as immune system weaknesses etc. shouldn’t be given vaccines. But here is the thing you don’t know you have such problems until something bad happens. I had many different bacterial and protozoan infections since birth. I had symptoms my whole life but I was functioning. Until I was given EIGHT vaccines in ONE sitting. I crashed so fast and so so hard. I’ve spent the majority of the past seven years bed/house ridden. I spent a year in the dark, without tv, music, or anything,even clothes. The past seven years have been spent having literally thousands upon thousands of panic/anxiety attacks, rages, and suicidal thoughts. Sure I was already sick but the vaccines took out the little bit of my immune system that hadn’t been taken down by my infections. Also the heavy metals in the vaccines have totally clogged up my system because I don’t detox properly.
   I went from reading on a college level in the fourth grade to a year later not being able to read at all. The last seven years of my life have been absolute hell that I literally wouldn’t wish on anyone. Even incredibly ignorant people like yourselves. I know you are on different paths than I so I’ll let you walk it. But just know that saying that issues that vaccines cause aren’t that bad, or that it doesn’t really matter because so “few” people have them, hurts us badly. And it’s just really rude. It belittles both us and our pain and makes us feel like we don’t matter. 
  I don’t think we should stop giving people vaccines. I’m not stupid, I know the facts. But I do think we need to be a hell of a lot more careful. When a child has undiagnosed medical issues, don’t give them a vaccine. We also need to test peoples immune systems to see if it’s a good idea to vaccinate them. I would have still been sick, yes. But I wouldn’t of been so ill I was literally begging to be put into a mental hospital. 
  And as for saying that things that are caused by vaccinations aren’t as bad as what they prevent: Well I’ve never had any of the things they prevent, but I’ll tell you I’d rather have had any amount of physical pain, and died many times over instead of living through all of the psychological pain (on top of the physical pain and dysfunction) that the situation caused me. Autism (what most people experience of it) isn’t the worst thing in the world I guess, but neither are some if not all of the things that vaccinations prevent.

floatawhile:

disabilityinkidlit:

girldwarf:

Pretty much.

[screenshot of Facebook post by someone called Miranda. The post says: “Even if I humor anti-vaccine activists and for a second believe that vaccines cause autism in 0.01% of children they’re administered to (spoiler alert: vaccines don’t cause autism), I am still deeply disturbed that these people are more afraid of people with disabilities than they are of fatal, painful, and endemic diseases. If cognitive disabilities are more threatening to you than children never getting to grow up because polio makes a comeback, you have priorities to reevaluate my friend. Shame on you for brainwashing mothers an families into believing that autism is the absolute worst thing that can happen to a person.]

Ok. I’m sick of this.

  No autism is not the worst thing that can happen to someone. And no I don’t have autism. But I have suffered greatly from symptoms that often add up to autism, even if in my case they don’t. Some people with autism have relatively normal lives. But don’t you dare tell people (especially the people living it) that it’s no big deal. Some people with autism (and other conditions caused or worsened by vaccinations WHICH DOES HAPPEN) are in such a hell all they can manage to do for hours a day is rock back in forth sitting in a dark room naked because of how bad their sensory issues are. I don’t have the exact numbers but it is a much bigger percentage than .01% of people who have issues with vaccinations. And you can’t ignore the fact that since we have started vaccinating people in third world countries (which I’m not saying was the wrong choice) that their autism rates have greatly risen.

   The heavy metals that are in them cause issues. The viruses themselves in them cause issues. Most people agree that people with problems such as immune system weaknesses etc. shouldn’t be given vaccines. But here is the thing you don’t know you have such problems until something bad happens. I had many different bacterial and protozoan infections since birth. I had symptoms my whole life but I was functioning. Until I was given EIGHT vaccines in ONE sitting. I crashed so fast and so so hard. I’ve spent the majority of the past seven years bed/house ridden. I spent a year in the dark, without tv, music, or anything,even clothes. The past seven years have been spent having literally thousands upon thousands of panic/anxiety attacks, rages, and suicidal thoughts. Sure I was already sick but the vaccines took out the little bit of my immune system that hadn’t been taken down by my infections. Also the heavy metals in the vaccines have totally clogged up my system because I don’t detox properly.

   I went from reading on a college level in the fourth grade to a year later not being able to read at all. The last seven years of my life have been absolute hell that I literally wouldn’t wish on anyone. Even incredibly ignorant people like yourselves. I know you are on different paths than I so I’ll let you walk it. But just know that saying that issues that vaccines cause aren’t that bad, or that it doesn’t really matter because so “few” people have them, hurts us badly. And it’s just really rude. It belittles both us and our pain and makes us feel like we don’t matter. 

  I don’t think we should stop giving people vaccines. I’m not stupid, I know the facts. But I do think we need to be a hell of a lot more careful. When a child has undiagnosed medical issues, don’t give them a vaccine. We also need to test peoples immune systems to see if it’s a good idea to vaccinate them. I would have still been sick, yes. But I wouldn’t of been so ill I was literally begging to be put into a mental hospital. 

  And as for saying that things that are caused by vaccinations aren’t as bad as what they prevent: Well I’ve never had any of the things they prevent, but I’ll tell you I’d rather have had any amount of physical pain, and died many times over instead of living through all of the psychological pain (on top of the physical pain and dysfunction) that the situation caused me. Autism (what most people experience of it) isn’t the worst thing in the world I guess, but neither are some if not all of the things that vaccinations prevent.

quietdharma:

From the “Dysautonomia: A New Way to Live” Facebook page

quietdharma:

From the “Dysautonomia: A New Way to Live” Facebook page

fibromyalgiamademedoit:

She didn’t even put down her book…

fibromyalgiamademedoit:

She didn’t even put down her book…

sick-girl-problems:

chronicchristianity:

does anybody else get really terrible nightmares from certain medications?

antibiotics do it for me, especially cipro. also flexeril makes my dreams really vivid although not necessarily nightmares. and of course anything I’m allergic to, but I know that’s really common.

what medications do it for you?



For me, it’s my sleeping meds, Trazadone. Or if I’m in the hospital they give me pain meds through my IV.

image

Traz, some antibiotics, and my infection Babesia do it for me. 

PSA

queenshulamit:

Psychotic means “has a mental illness that causes hallucinations” not “evil person.”

"Have you tried drinking water?"

heartfilledminds:

too-soon-and-in-vain:

No, as someone who has suffered increasingly from chronic migraines for two years, I have not tried

drinking

water.

What is this thing you call drinking? Is it something we need to do?

flaresof-fibro:

Every spoonie is highly skilled in creating shortcuts. Never doubt our ability to get something done, using as little energy as possible.