In a few hours I’m leaving to go to the Doctor again, so I won’t be on very much if at all for the next few days. I will be here when I get back and I am here in spirit for all of you always. xoxo
Things I don’t understand:
- why my PICC scar still swells up and itches every once in a while.
I keep getting these things where I get really shaky/twitchy/trembly and I think oh maybe I need to eat and then once I start eating I can’t stop. It’s weird…
You don’t know the full time job that is taking care of my body. You don’t known what happens when I take days off from that job.
It’s bizarre that some people seem to have this incredibly misinformed attitude that it must be easy to have a chronic illness because you don’t ‘have’ to work or study and you ‘get’ to stay at home all day, when I think most chronic illness sufferers would give almost anything to be able to have some semblance of a job.
Well I for one and freaking exhausted
And I did nothing but sit here today.
Who else gets really herxy/ has symptom flares on the full (and sometimes new) moon?
I don’t think people understand that my body needs to get a certain amount of sleep. I cannot just skip those hours or I’ll be out of commission for the next week. It doesn’t work like that for the chronically ill. Skipping sleep isn’t easy or doable or a simple solution. It is an impossibility.