Things I don’t understand:

  • why my PICC scar still swells up and itches every once in a while. 

I keep getting these things where I get really shaky/twitchy/trembly and I think oh maybe I need to eat and then once I start eating I can’t stop. It’s weird…

spooniestrong:

Sending you all spoons from Epcot!

spooniestrong:

Sending you all spoons from Epcot!

journalistpoet:

You don’t know the full time job that is taking care of my body. You don’t known what happens when I take days off from that job.

chronicallyinvisible:

It’s bizarre that some people seem to have this incredibly misinformed attitude that it must be easy to have a chronic illness because you don’t ‘have’ to work or study and you ‘get’ to stay at home all day, when I think most chronic illness sufferers would give almost anything to be able to have some semblance of a job.

thepillowfortuk:

Meet a pharmacy you might actually love. PillPack sorts and delivers medications. Never sort a pill box or wait in line at the pharmacy again! www.pillpack.com

thepillowfortuk:

Meet a pharmacy you might actually love. PillPack sorts and delivers medications. Never sort a pill box or wait in line at the pharmacy again! www.pillpack.com

Well I for one and freaking exhausted

And I did nothing but sit here today.

#SpoonyPride

Who else gets really herxy/ has symptom flares on the full (and sometimes new) moon?

heyatleastitsnotcancer:

I don’t think people understand that my body needs to get a certain amount of sleep. I cannot just skip those hours or I’ll be out of commission for the next week. It doesn’t work like that for the chronically ill. Skipping sleep isn’t easy or doable or a simple solution. It is an impossibility. 

When person #15632 suggests yoga

whatshouldwecallfibro:

image